For those of you with gluten sensitivity, please do not feel abandoned by the celiac research community. We can understand it is frustrating when friends and family may think you are lying and when popular media continually leaves you out of the “must eat gluten-free” group.
There are a lot of top name researchers who are making real progress in identifying what is triggering these reactions. The scientific community has made significant strides and is continuing to study why this is happening and what the indicators might be.
Today there is some pretty good evidence that some people may be dealing with FODMAP issues and others may be reacting to another component of wheat (amylase/trypsin inhibitors). This was in the theoretical discussion stage two years ago at the International Coeliac Disease Symposium in Prague. There is even some progress on bio-markers to allow a positive diagnosis rather than a “rule out” diagnosis.
The CCA changed its mission to focus on “anyone adversely affected by gluten” despite the concern expressed by long-term members who were afraid we were going to forget about people with celiac disease. We recognize that we all face the same challenges eating safely.
To read more about non-celiac gluten sensitivity, please visit https://www.celiac.ca/gluten-related-disorders/non-celiac-gluten-sensitivity/.